What We’re Doing

CICADA Study Description and Process

Stage 1

We have surveyed over 5,000 people in the UK about their pandemic experiences. Of these, 4362 were completed correctly and are being used by us for analysis. Roughly half are from minoritised ethnic groups, and roughly half of the 4362 are disabled or have a chronic condition.

We are exploring the survey respondents’ health, social networks (who they have contact with) and how these help or hinder them, ways they cope with pandemic changes and associated access to support, care and resources.

We will consider which factors affect this and patterns over time.

We are also undertaking analysis of data already collected for other surveys during the pandemic, from the Centre for Longitudinal Studies at UCL.

We have interviewed over 230 people about the same topics as the survey, focusing on 5 diverse sites in England. We probed for coping strategies and ideas to inform health and social care policy and practice. Interviewees also described their networks using special brief questionnaires, photos and maps.

We are focusing on migrants from South Asia, Central and East Europe, Arab countries or Africa, or whose parents were born there, as these are the most likely to have pandemic problems (e.g. to have limited citizenship rights or to die from COVID-19). We are also looking at the impact on migrants of having a chronic condition/disability including long covid.

We trained local lay people to help undertake these interviews remotely; eight lay co-researchers helped us.

We have also undertaken a ‘scoping’ review of the literature about being disabled and from a minoritised ethnic group during the pandemic and we are writing this up.

Person in wheelchair looking at camera

Stage 2

We are currently repeating the survey with the same people we surveyed in stage 1. So far we have had over 3,400 valid responses to this. We will repeat the survey with the same people a third time, later this year.

We have completed a series of online and face to face research workshops with over 100 of the people we interviewed in stage 1, to discuss more recent changes, using recorded excerpts developed from stage 1 study findings. Later in the year we will repeat these workshops and at that time we will invite more of the 230+ people we originally interviewed.

We also have new funding to do a ‘study within a study’ looking at mental health and the pandemic in migrants living in the North of England.

We are also currently preparing 3 participatory co-create sessions with people with disabilities/from ethnic minorities and key informants working together. These will help analyse our data and co-create solutions to issues, pragmatically including ‘life hacks’ and service adaptations for rapid impact.

Near the end of the study we will interview 15-25 key informants such as support staff and community leaders to help us put our work into immediate practice.

For those who want the technical details, we are using use keyword frequency analysis, Framework, discourse and narrative analyses, Latent Growth Modelling, Structural Equation Modelling, systematic review methods, and social network analyses to analyse our data, which will be synthesised using tabulated evidence-to-decision methods.

We will report changes over time in experiences, outcomes and solutions.

Respondent and national UK demographic data will be compared for representativeness, and transferability explored at each stage i.e. how to apply our work across the UK.

Data will be presented separately and combined for ethnic minorities and people with chronic conditions and disabilities.

Nurse holding and reading from a clipboard