What We’re Doing

CICADA Study Description and Process

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We will survey 4,000 UK 1st and 2nd generation minority ethnic group members and for contrast 1000 white British, 3 times over 15 months across the UK’s 4 nations.

We will compare their health, social networks (who they have contact with) and how these help or hinder them, ways they cope with pandemic changes and associated access to support, care and resources.

We will consider which factors affect this and patterns over time.

After Survey 1 we will interview 210 people in 5 diverse sites in England about the same topics, informed by survey analyses. We will probe for coping strategies and ideas to inform health and social care policy and practice.

Interviewees will also describe their networks using special brief questionnaires, photos and maps.

We are focusing on migrants from India, Pakistan, Poland or Africa, or whose parents were born there, as these are the most likely to have pandemic problems (e.g. to have limited citizenship rights or to die from COVID-19).

We will look at the impact of also having a chronic condition/disability including long covid.

We will train local lay people to help undertake these interviews remotely.

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Person in wheelchair looking at camera

After each of surveys 2 and 3, interviewees will be invited to research workshops to discuss findings and more recent changes, using videos developed from earlier study findings.

Over the 18-month study we will hold 5 participatory sessions with people with disabilities/from ethnic minorities and key informants working together. These will help analyse our data and co-create solutions to issues, pragmatically including ‘life hacks’ and service adaptations for rapid impact.

At 16 months we will interview 15-25 key informants such as support staff and community leaders to help us put our work into immediate practice.

For those who want the technical details, we will use keyword frequency analysis, Framework, discourse and narrative analyses, Latent Growth Modelling, Structural Equation Modelling, systematic review methods, and social network analyses to analyse our data, which will be synthesised using tabulated evidence-to-decision methods.

indings and solutions will be shared as they emerge at each of the 3 data waves, for early benefit.

We will report changes over time in experiences, outcomes and solutions.

Respondent and national UK demographic data will be compared for representativeness, and transferability explored at each stage i.e. how to apply our work across the UK.

Data will be presented separately and combined for ethnic minorities and people with chronic conditions and disabilities.

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